Working with patients & families for end-of-life and palliative care issues
COVID-19 Response Resources from The Center to Advance Palliative Care (CAPC) offers an excellent toolkit of resources and online courses have been made publicly available. Topics that are covered include:
- Communication Scripts and Conversation Videos – How to talk to patients and families about COVID-19.
- Resilience – Resources for improving team health and tools to help individual clinicians cope with crisis, grief, and post-traumatic stress disorder.
- Palliative Care Team Tools – Operational guidance to help teams address high levels of volume and stress during a crisis.
- Voices from the Front Line – Profiles from palliative care programs in hard-hit regions of the country, detailing their COVID response strategies including role of palliative care team, use of IDT, and advice for how to prepare.
- Using Telehealth – Tools to facilitate telehealth and telemedicine setup, operations, billing, and virtual visit etiquette.
- Setting-Specific Guidance – Curated resources and information by care setting.
The Challenges Of Providing End-Of-Life Care In A Pandemic
Resources for Hospice & Palliative Care During the COVID-19 Pandemic – Social Work Hospice and Palliative Care Network
- Specific Phrases & Word Choices that Can Be Helpful When Dealing with COVID19
- Working With Families Facing Undesired Outcomes During the COVID-19 Crisis
Managing healthcare worker health, wellness, and stress
- Resources to Support the Health and Well-Being of Clinicians During COVID-19 outbreak – an extensive variety of resources from the National Academy of Medicine’s Action Collaborative on Clinician Well-Being and Resilience
- Palliative Care Team and Individual Stress Mitigation Strategies – CAPPCPC
- Coronavirus COVID-19: Protecting & Enabling Health Care Workers – American Hospital Association
- Resources for Healthcare Professionals Coping with the COVID-19 Pandemic – The Schwartz Center for Compassionate Care
- Sustaining the Well-Being of Healthcare Personnel during Coronavirus and other Infectious Disease Outbreaks
- Decompress Podcast – A daily podcast from Tony Back, MD, co-founder of VitalTalk, about what health care professionals can do to sustain themselves.
- Managing Stress & Self Care during COVID-19: Information for Nurses – American Psychiatric Nurses Association
- Managing Fatigue During Times of Crisis: Guidance for Nurses, Managers, and Other Healthcare Workers – CDC
- COVID-19 Mental Health and Well-being – ANA
General COVID-19 Resources for healthcare workers
- The American Nurses Association (ANA) COVID-19 Resource Center – Includes resources on clinical matters, legislative and regulatory advocacy
- Coronavrius (COVID-19) Resources – The Joint Commission
- Coronavirus Disease 2019 (COVID-19) News and Resources – from the National Academies of Sciences, Engineering, and Medicine
- Information for Healthcare Professionals about Coronavirus (COVID-19) (CDC)
- Preparedness Tools for Healthcare Professionals and Facilities Responding to Coronavirus (COVID-19) – CDC
Shared stories
- Our new lives: Stories from the coronavirus pandemic – The doctors, nurses, family and victims on the front lines of the outbreak share how covid-19 has disrupted their lives (Washington Post)
- Nurses Stories (ANA) – Submit your story
- KevinMd Blog – physicians share their perspectives on COVID19 work
- HERO – Healthcare Worker Exposure Response & Outcomes – a large, national clinical research community that invites healthcare workers across America to share clinical and life experiences to understand the perspectives and problems they face on the COVID-19 pandemic front lines. The HERO Registry is open to all healthcare workers, including nurses, therapists, physicians, emergency responders, food service workers, environmental service workers, interpreters, transporters — anyone who works in a setting where people receive health care. Learn more about this: USA Today: HERO Registry asks health care workers to share their stories, fears battling coronavirus
How to support healthcare workers
- How to Help the Helpers – The coronavirus pandemic has pushed medical professionals into the front lines of danger. Here’s what you can do to help, safely. New York Times
- How To Support People In Health Care Working During Coronavirus – People who work in medicine are being stretched beyond the limit in this COVID-19 outbreak. Take care of them – HuffPost
- Direct Relief – COVID-19 Relief – working in overdrive to get protective gear and critical care medications to as many health workers as possible, as quickly as possible, with emergency deliveries leaving daily for medical facilities across the U.S.
- Coronavirus Response Fund for Nurses – The national fund will address the identified, emerging needs of nurses and will focus on providing direct financial assistance to nurses; Supporting the mental health of nurses; Ensuring nurses everywhere have access to the latest science-based information to protect themselves, prevent infection, and care for those in need; Driving the national advocacy focused on nurses and patients. This national effort is being kicked off with a $1.5 million grant from Johnson & Johnson and the TYLENOL brand. Donate.
- First Responders First – provides essential supplies, equipment, accommodations, child care, food, mental health support and other resources for protecting front line healthcare workers and their patients.